Nothing much to report this way, except it was a busy day at work. The day went by fast and before I knew it, I was heading to the lung specialist for my 3 p.m. appointment.
While sitting in the waiting room, my mind starting thinking about when I was officially diagnosed with Lupus and End Stage Renal Disease (another way of saying complete kidney failure) , and I must say that out of all this time, the one thing I wished I had done was document (in writing and pictures) everything I was going through. So much happened during those years, and it would have been interesting to go back and read how I felt going through each stage of my disease. I would have had so much to talk about: being on dialysis (peritoneal and hemodialysis) , the seizures, waking up from a coma, how it felt knowing my kidneys would never work again, the process of getting on the transplant list, the depressing times at the dialysis clinic, losing my sister in the process of going through all that, and the list goes on and on. Maybe one of these days, I will sit down and try my best to write down everything I can remember. Knowing my story could possibly help someone else down the road and encourage them not to ever give up is a dream I have held on to for a very long time.
I guess that is why I took out my phone and started taking pictures of what was around me. My want to document everything got the best of me, and even though there was not much to look at, I still wanted to have something to remember the day. Note to self: People will look at you strange if you start taking pictures of random things around you. I take it they were not used to someone just taking pictures for the fun of it. Oh well.
I was looking out the window and wanted to get a unique picture of the windows and the cars outside. My idea was to get different angles, but the stares from people stopped me. Lesson #1: become more confident about taking pictures . . . and not care what those around me are thinking of me.
Here’s a pic of my Blueberry/Tardis, waiting for me to make my escape (You get it? It’s a Ford Escape, waiting for me to make my escape. Funny, eh? No. *Sigh* – Good thing I never went towards the comedy career path).
Anyone who has ever had a doctor’s appointment or has ever stayed in a hospital should know what this is. You hear it coming down the hallway, it’s wheels squeaking to announce its arrival. We all love it when are arms are squeezed so tight, it feels like the blood is going to burst right through your skin. Every time I hear or see one of these, it reminds of those nights in the hospital when the nurses would come once an hour to check my vitals. Really? Once an hour? I thought the whole point of being in the hospital was to get better and REST. That is kind of hard to do when someone comes into your room at 3 a.m., and then squeezes the life out of your arm. Ahh – good times.
The appointment went well. All it did was reaffirm what I already knew – I have asthma. Now I can add that to the list of ailments that plague me on a daily basis (asthma, anemia, Lupus . . . yeah, that list can go on forever too, but it’s ok).
The good news of all of this? I am still happy to be alive
No walking was done today – I had a rough two days and I decided to rest (and my definition of rest was playing Sims 3 University Life for about 3 hours. It was worth it). My miles will be caught up by the end of the week.
Tomorrow is Thursday, which means the countdown for the weekend will begin. Take care, my friends.